Battery & Charging

Of course one of the first questions that arises when you plan to drive an electric mobility scooter a long distance is do you have batteries that can get you that far? I think I have just about got a plan sorted out for batteries, but I’ll have to get them and test them to…

A Grand Day Out

Another typical walk for Gracie through Jersey City. Starting in the park and making our way through the Paulus Hook area, where the trees are in full Autumn colors. Off past the courthouse to the Grove Street PATH Station (today there is a farmer’s market) and the historic downtown area, with lots of small shops,…

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Funding for FSHD Research

The following table shows the prevalence  for FSHD and two better-recognized neuromuscular disorders, Duchenne’s muscular dystrophy (DMD) and amyotrophic lateral sclerosis (ALS, Lou Gehrig’s disease). Also shown is the research funding in 2013 for the three diseases from the two primarily funding sources, the National Institutes of Health (NIH) and the Muscular Dystrophy Association (MDA). Finally, it…

Nice day for a swim

Gracie finally gave up on the ducks and geese. We met several people today who had words of encouragement and more regarding the Coast-to-Coast fundraising trip. Brian, a friend from the dog park who is in public relations and marketing, offered to make the initial contact with Pride Mobility to propose sponsoring the journey. Also…

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