About Us

My name is Doug Craig. I was diagnosed with FSHD in 1968. I am now 61 years old and have retired from a career as a biotech and pharmaceutical research scientist. I have been an active supporter of the FSH Society for many years, but, aside from making monetary donations, I have never taken it upon myself to raise funds for the organization. Of course, if I wasn’t willing to step up and try fundraising, then it wasn’t exactly fair to expect others to do it. Nevertheless, I managed to side-step the issue—that is, until now. Its time I make a change and try to make a difference.


Gracie is a 2-year-old, 80-lb Bernese Mountain Dog mix. My wife, Elizabeth, and I adopted her in October 2013 from See Spot Rescued in Jersey City, NJ, the day after she arrived from a shelter in West Virginia. We fell in love with her immediately, and she was pretty taken with us, too. On our trial walk, we went through the streets of downtown Jersey City—construction noises, jackhammers, traffic, pedestrians—and she was totally unperturbed by all the commotion. She is great with grownups, kids, and babies. She is pretty great in all situations and plays well with all dogs, although she can sometimes be a little intimidated by really large dogs, and sometimes tries to intervene with a high-pitched bark if she thinks they’re getting too close and endangering me. She has always seemed to know that I’m not as strong or stable as others, and has always taken great care not to bump me when standing. She doesn’t like the sound of fireworks, not that I’m expecting that we’ll be greeted with fireworks when we roll through your city/town. She was quite put off and started barking when we first encountered a snowman in the park last winter, but I don’t think we’ll encounter snowmen on this trip. I think all dogs are great, but Gracie…to me, she is extra great. If I left her at home during this adventure, I would miss her and she would be so bored in the apartment all day. So, here we come.

'About Us' have 8 comments

  1. September 11, 2015 @ 2:40 pm Ken Slavik

    Hello Doug,

    It has been some time since we were at UH Pharmacology with Musty Dave and all. Your trip is inspiring. When you get back Madhu Dave B Stan and all in the NJ/PHL area should get together and celebrate success. Mari and I wish you and Gracie a safe trip. Catch up with you soon.
    Best Regards
    Ken Slavik


    • October 7, 2015 @ 3:01 pm Doug

      Hi Ken,
      Sorry I am so late in replying. I have not been checking the comments area on the website like I should have been. Where are you now. I seem to recall that you are in Nashville or something like that. I would be good to get together with the UH crew. It was good fun when we did this a couple of years back. Thanks for your support and for following along on this trip.


  2. August 29, 2015 @ 6:19 pm Anne Harland

    I love your attitude!
    There are those who will be first in line should a cure be found but are doing nothing to achieve that end.It appears we share the same attitude “Don’t let what you can’t do interfere with what you can do.” Happy trails to you and Gracie.
    Anne Harland (Lowe)
    Canadian FSHD Network


    • September 2, 2015 @ 7:43 pm Doug

      Hi Anne, thanks very much. I appreciate your support. It so important that we try to get a message about FSHD to people outside the circles of those in the FSHD community.


  3. August 29, 2015 @ 5:18 pm Ken

    Dear Doug, As a fellow research scientist with FSHD, I am proud and awed about what you and Gracie are trying to accomplish. I wish I could join the three of you on this adventure, but will look forward to following your trip from afar. Be safe, and have a great time. Ken


  4. April 17, 2015 @ 10:09 pm Sharath Hegde

    Hi Doug – I have always been a big fan of you and I am so proud of you and Gracie for embarking on this adventure for a good cause. Best wishes to both of you – I will be thinking of you everyday – Be safe!



  5. February 25, 2015 @ 1:45 am drw_lewis@comcast.net

    Dear Doug: The trip which you have proposed for yourself and Gracie sounds intriguing and certainly qualifies as being “for a good cause.” There will be many of us praying for your safety as well as the success for your fundraising effort. If all goes well this should prove to be “the time of your life” as extraordinary experiences go–and I suspect that Gracie will have a similar experience. We at the FSH Society thank you for this contribution of time and enthusiasm on our behalf and we will be pulling for you all the way. Apart from any funds you may engender you will no doubt create a great deal of goodwill and admiration for all of those who are handicapped but who, like you, are meeting the challenges of life with great courage and steadfastness.
    Best wishes to you and Gracie,
    William R. (Bill) Lewis, M. D.
    FSH Society Board Chair


  6. February 11, 2015 @ 10:47 pm Jenifer

    I love how you’re spreading the word and teaching people about this disease. You and Gracie are quite a team! I can’t even begin to imagine the adventure you two will have. I’m sending you lots of positive and encouraging thoughts and prayers.



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